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Parkinson's
What Doctors Don't Tell You: Parkinson's Disease by Healthy.net
Gut Microbiota and Parkinson’s Disease: Connection Made by Science Daily
Patient’s Pedal Past Parkinson's
"If you or a loved one is showing signs of Parkinson’s disease or has the disease, please find a medical practitioner that is familiar with the benefits of NAD and Glutathione supplementation for this condition."
FDA Opposes Use of ‘Silver’ Dental Filings for Parkinson’s Patients, Others
Parkinson’s Disease as a Manifestation of Mercury Toxicity
Scientist Sounds Alarm: 2021 Injections Producing Parkinson's Symptoms, Other Neurodegenerative Disorders (July 2021)
Parkinson's Disease Increase due to 2021 Injections - Dr. Judy Mikovits
“Parkinson disease protein DJ-1 binds metals and protects against metal-induced cytotoxicity” by Bjorkblom, B., et al., J Biol Chem, 2013, Aug 2, 288 (31) :22809-20.
“Amino-acid management of Parkinson’s disease: a case study.” by Marty Hinz, et al., Inter J of General Medicine, 2011:4.
Robert Tisserand suggested in an online forum that Copaiba may be helpful for verbal fluency issues related to Parkinson's. Robert didn't respond to the followup question as to why Copaiba may be helpful. (December 8, 2023 AromaPsychology Course Forum)
Fusion AromaCare and Parkinson by Kicozo
Parkinson's Symptoms Progression Shared by a Customer
The following is my attempt to document when things became noticeable and when things seemed to exacerbate regarding Parkinson's disease with my husband. I began noticing changes in Cliff about two to three years ago. The changes were subtle, but definitely troubling. Before that, we had gone through something similar when he retired (several years prior). He was lost and unfocused. He spent over 20 years in military service and then another 16 years in postal service and without that structure he was adrift. He had no interest of his own in which to pour that work ethic. I felt that accounted for much of the change I noticed in him. He was bored or frustrated, but then other things started to be obvious to me.
About a year and a half ago I noticed his posture had changed. He pitched forward a bit with his chin forward toward his chest and leaning in a bit. Before this his posture had always been ramrod straight. He was walking with his arms straight down from his body with hardly any arm movement. I also noticed that he shuffled when he walked down the hallway and through the house. I could hear his feet dragging on the carpet or along the wooden floors. He became more deliberate in doing anything with his hands. A small task like cutting up a fruit became a very focused and time-consuming task. He was doing these things, but very slowly and painstakingly. His voice had become softer, as he was not projecting well and he had trouble responding in conversations. I was never sure if he had nothing to say or if he was having difficulty getting his response out. It was confusing for me. When he was trying to "be a part" of conversations (usually when our adult kids were around), he would rely on juvenile forms of humor to contribute or sometimes he'd just say things that were in no way connected to what was being discussed. He'd pause in odd places or have difficulty in relaying a thought or idea completely.
The tremors started over a year and a half ago. They were very slight at first and progressed from one hand to both, then to his head and then complete upper body involvement. He ignored and minimized the tremors for a very long time. I was advising him to talk to his doctor about the changes, and he said he was, but then there was no indication that his doctor was addressing the issues. I finally called and spoke to his nurse about my concerns. She asked a lot of questions and said she would relay my concerns to the doctor. I began going with Cliff to appointments and making sure he was being open with his doctor. His doctor diagnosed him with essential tremor, age related, non specific. No treatment.Things continued to develop and I insisted on a neurologic evaluation. We began seeing a neurologist this past year who also diagnosed Cliff with essential tremor. Medication was primarily for that and no further issues were noted. But, things progressed and Cliff ignored them. I was becoming more and more convinced that it was not tremors, but Parkinson's. Cliff no longer expressed any emotion, he had to actually force himself to smile for photos, which looked painful to me - like he had forgotten how to smile or how to use his muscles. His laugh was no longer genuine, but a forced kind of pretend laugh.
He became very slow in doing normal activities and had to be very deliberate to do things like eat or brush his teeth. He had stiffness in movement, and especially after sitting or sleeping he had a hard time getting his legs to do what he wanted, when he wanted. It was like his brain and body were not really communicating well.
Nightmares, terrors, sleep walking-like behaviors
I found him out of bed looking for something on the floor or under the bed in complete darkness. I'd have to reassure him and get him back in bed or calm him down and back to sleep. Thankfully he'd rarely wake again that night. He would talk loudly in his sleep or have several apnea episodes. He agreed to try a C-pap machine and it worked very well until he decided he did not want to use it. I think two things caused this: 1) he tossed and turned with restless leg syndrome and would end up rolled up in the tubing and 2) being a stomach sleeper, he did not like sleeping on his back or side.
I don't know if our experience is typical of other couples, but I do know that there are so many things that influenced our path. Cliff does not want to be seen as sick, weak, aged or frail. There is a lot of ego and family dynamics bound up in this. I think the realization that Cliff's need to appear strong and in control was not allowing him to ask for more help from his doctor. I just hope for him to be as happy and capable as possible, for as long as possible.
Testimonies
1. I am in the beginning stages of Parkinson’s disease and have had tremors in my arms all through the day. I started applying Lavender, Strength and Muscle Relax in a little massage oil on my arms every morning, and after about a week, the tremors calmed down. After a month, they disappeared.
2. I was diagnosed with Parkinson’s and decided not to take any prescription medications. I didn’t want to smell like Muscle Relax, so I decided to take a few drops in a capsule whenever the tremors affected my handwriting, which is mostly at work (and why I find it easier to take via capsule rather than apply topically). Not long after taking the capsule, the tremors decrease and my handwriting improves. After doing this for a few months, I’m experiencing significant improvement.
3. I am a massage therapist and have a patient with Parkinson’s disease who is finding a lot of relief from a weekly massage of Pain-X with a massage oil massaged on his arms and shoulders.
4. There is a lot of evidence that supplementation with COQ10 in large amounts have worked wonders in those with Parkinson's. Also, there is no known toxicity or overdose limit. I don't think there are any detrimental side effects either, just better dental, cardiovascular and mental health plus more energy! The ubiquinol form is best. This is the one that needs no transformation by the body. It is expensive, but worth it. Any brand that contains the trademark "Kaneka" from Japan is best. - Susan Y.
5. After 4 months on the Wahls diet I am feeling great. All my Parkinson’s disease symptoms are reducing, and some have entirely disappeared. All this is with no change in my medication since October 2011. My medical providers say they have never witnessed anyone with Parkinson’s improve without increasing medication. Increased energy has allowed me to go to the gym for five half-hour sessions weekly. My affected right side is getting stronger to balance the left.
Fatigue - gone/normal
Bowels - normal (though I need a month’s supply of healthy bacteria for my gut in capsule form so that chronic constipation disappeared)
Urinary Frequency - gone/normal
Handwriting - almost normal and improving weekly
Fine Motor Control - recovering
Typing - improving
Sleep Disturbances - minimal
Facial Expressiveness - returning to normal
Voice - getting stronger weekly
6. After reaching the maximum dosage of a prescription medicine for Essential Tremors (Parkinson-like tremors), my mom's tremors were still limiting her movement and her quality of life. Her tremors were so advanced that they were occurring in every part of her body, upper, lower and her voice as well. At the suggestion of a friend, she tried Balance, Vitality and Peaceful, all topically and diffused, in an attempt to control the Parkinson-like tremors. After only a few days, she was encouraged. Now, after two weeks of use, she can walk with a cane rather than her walker--most of the time. There are even times when she is strong enough to walk on her own. She takes daily 5-15 minute walks around the neighborhood with my dad. Each day she goes a bit longer and they come home beaming. They are as cute as can be--my dad is so happy to wrap his arm around his bride of 50+ years as they stroll along. They have even shared a slow fox trot together. Her hand is steadier and she has resumed crocheting and writing. Just today, she hand wrote a letter to a friend. It's been a few years since she could write a letter. She has enjoyed reading again. Her head is still enough that she can see the words on the page without feeling sea sick. Mom uses Vitality in a diffuser in the mornings and late afternoon. It runs for 10 minutes out of every 20 minutes. She uses Peaceful topically. Several times a day, she places it on her sternum, behind her neck and, at bedtime, on the soles of her feet. She also carries a ladies' cotton handkerchief with a few drops of the oil on the corner to inhale. At the same times that she applies Peaceful, she places Balance on the mastoid bone behind her right ear. We tried diffusing Peaceful but found it had a greater effect for her when applied topically. Mom takes two medications: Primidone and Neurotin. She continues to take them while we use the essential oils. I hope someone else's family member receives the same relief my mom has enjoyed. I'm so grateful for the encouragement of our friend who set us on this path. My dad and mom are over the moon. Praise God for this ministry and for His provision. - Pattie
7. I used Vitex on my mother with Parkinsons with great results. I diluted it to 3% (about 30 drops Vitex to an ounce of fractionated Coconut oil) and massaged it on her spine morning and night. Sometimes the grandkids give her a foot massage with it. She loves it :-) - Maggie
8. We have almost totally resolve Tourette's symptoms by using Strength and Vitex. Peaceful is also helpful, but I think the key is Vitex. - Sophie
9. The following was shared with us by someone who is experiencing Parkinson's symptoms/diagnosis.
Unique supplements he's using:
Red Palm oil taken orally with something hot like soup or coffee (Nutiva)
Cannabis gummies for chronic sleep/insomnia issues (NAYSA Full Spectrum Vegan Gummies is one brand he's tried that has worked and another brand he is researching is "Innovative CBD")
Specific and Intense Exercise Therapy is mentioned in numerous articles they have read and seems to be very important. They found help for this at a Scott and White Hospital.
He’s researching the following:
Colin Potter interview
Treating and preventing dementia
Parkinson's dietary study
Ketone Coffee